So I suffer from something we like to call brain “fog” and I have for a while. It happens to be one of the side effects of at least two of my conditions. For those of you who are new, welcome. I started writing as a way to chronicle my journey through hereditary hemochromatosis with porphyria cutanea tarda. I thought that was going to be it. Then I added more about Hashimoto’s Thyroiditis, and dealing with autoimmune food reactions, then fibromyalgia and last was going to be Epstein-Barr virus. Today I had an MRI done and it was not really, well, enjoyable. It was necessary, which is why I continued to talk to myself throughout the process and breathe deeply.
We are exploring the possibility of a pituitary issue…honestly, I am just trying to live moment to moment so I will cross that bridge when I come to it. I don’t know many other people with as many conditions as I have, but if you are reading this and it applies to you, please feel free to let me know some mechanisms you use to cope. I have to stay present. If I try to commit to things long-term, it actually stresses me out. On a day to day basis, I do not know how I am going to feel. Lately, with no warning at all, I have extreme fatigue during the middle of the day. It comes on with no warning. I have to drop the negative. People. Situations. Thoughts. I simply can’t deal. I make a list. If I cross one thing off that list that day, great. If not, I can still do it the next day. I honestly use it to stay accountable plus remember things. I don’t like forgetting, but it happens. Lastly, I hold my dogs. Animals can be a way to relieve stress…well, for the most part. They make me happy, and they are fluffy dachshunds. Win.
