So it just takes one thing...just one for me to start my yo-yo mood. The other day, I was doing whatever random things I do on the computer. Mostly making quotes for a few pages I run, and a friend sent me this article in a message called It's Not Fibromyalgia. I read her message and was surprised that she too suffered...but when I started reading this post, my head went to the place it goes to when people write about their experiences. It kind of goes like this when people talk about how bad it is living with pain... I hear you sister. I understand this. It sucks, but damn this is depressing to read in someone's voice other than my own. Do I sound like this? Crap. This is messed up. Sigh. More depressing things I have been through. I could be her...she could be me. Wait. Wait a minute. She just said something I need to hear. Someone actually listened to her. Hold on and back up to that part because the rest is the same as my life. Except this part. This part where she finds HOPE.
So I get to the symptoms, you know the part where invisible diseases can't be seen except for the fact that I have lots of those symptoms...and doctors don't really know what to do...so I kind of stopped talking to them about what's going on. And I get to the part where she prayed she had this thing because it actually explains something. Black mold. Wow. Who knew? Well, obviously someone did, but not anyone else most of us have ever come across in our long line of 18 different specialists. So I messaged my one advocate in this fight... Dr. Marion who I have written about. And she says yes. Yes we can do this test.
For those of you who might be new, I gave up on regular doctors after getting diagnosed with fibromyalgia by a man who was a nervous wreck and a top rheumatologist in the area. He said he understood why I wouldn't want to be on pharmaceuticals given the side effects of the "medicines" and the possibility of a liver compromise with hereditary hemochromatosis (see my tab at the top about that genetic disorder). Not to mention the other possible complications with those "drugs". I decided to go all-natural using plant based phytotherapy (see my tab Vitalize You at the top). So that brings me to where I am. No doctors listen to my intuition. None. I know for a fact that something deep down has made so many things spin off...and it's only a matter of time before we find the link. So if this isn't it...we keep going. But it's one more thing to cross off. I will let you know what happens.
Posted in Autoimmune, autoimmuneblack mold toxinsCFSchanging lifechronic illnessdealing with lifeEpstein-BarrfatiguefibromyalgiaHashimoto's diseasehereditary hemochromatosisinvisible diseasesjoint painliving with painNeurotoxinspainpain managementpersonalstomach painHealth
